Warning: This is a rant.
This post is a rant and nothing but a rant – so if you’re looking for product information and witty stories about Husband then please move on to the next post.
I was hesitant at first to write this because Glutastic is the place I go to laugh about my life. But this rant isn’t about the funny, it’s about my frustration. But it’s a frustration I’m sure some of you have so I figured it wouldn’t be fair to leave this out.
This last week has been a challenging one. I’m good with challenge, I thrive in challenge, but I don’t do well with challenge brought on by the ignorance of others. And the straw that broke me this week was a GF cookie.
So here’s the deal: Husband and I live and work from home, which means 24 hours a day/ 7 days a week in the same place. We’ve done well with the ‘togetherness’ of it all, but sometimes we loose our minds over having to be in one place all the time. As a way to mix things up we usually go to Northside Social at least once or twice a week. It’s a really nice coffee shop/wine bar near campus. We really like it there. It’s become our office away from the office. Sometime ago they started selling GF cookies. After having a conversation or two with some the staff, I managed to teach them the ins and outs of cross contamination at the counter when serving the cookies. They were really receptive to it and I was elated.
At least, I was elated until last week when the manager of the coffee shop told me that they really don’t make an effort to avoid cross contamination in the kitchen when they make them. They call them gluten free because they don’t knowingly bake them with gluten in them but that’s as far as their care and concern really goes. True to fashion, the first thing out of my mouth was “what the hell”. In all the conversations I had with staff before this point, they never made an effort to tell me these things. Turns out that they only mean to sell them to people who have chosen to go gluten free as a lifestyle choice. Again, the first thing out of my mouth was “what the hell” – why wouldn’t they be as clear and transparent as possible about this? Why wouldn’t they care what the possible issues are with taking this less then seriously.
And then I found out – Gluten Free is a fad.
It’s a fad that is putting my health in danger.
Gluten Free has become a ‘thing’ that people are choosing not because they have to, but because it sounds like the fashionably healthy thing to do. The bonus of this: it’s increasing the market demand and it’s putting pressure on companies to produce gluten free. The Pitfall: it’s degrading the industry and turning our disease into a fad. Instead of catering to the disease, companies are catering to the fad which means that their products are dangerous to us. The fad doesn’t care about cross contamination, the fad doesn’t care if some of the products aren’t fully gluten free – the fad doesn’t care that their lifestyle choices put the rest of us in danger.
And this is where the tipping point comes for me – I now have to be wary of everything and anything labeled Gluten Free. I have to ask more questions then I use to, I have to read labels looking for things that I never thought to look for before, and worst of all, when I find out that the GF product or menu is meant for the “lifestyle people” I have to go without and the company gets to keep selling products and making money.
I’d like to send out a huge shout out to the ‘lifestyle’ people. I’d like to say thank you for taking your ‘flash in the pan’ choices and using them in ways that make my disease more dangerous to me then it ever has been before. Thank you for playing roulette with my health and thank you for saturating the market with your crap. On behalf of Celiacs everywhere, I’d like to thank you for helping breed a new generation of food providers who are willing to take chances with me so that they can sell something to you.
If you’re curious how far this issue goes, here’s an article that sheds a little light on it. Got to love this chef, because I’m sure he’s not the only one.
« Let’s Talk About Bars Summer Time and the Living is Easy »
The Celiac Husband
April 4th, 2011 at 9:42 am
Tough comments by the manager. Hope you will be OK.
caitlin
April 4th, 2011 at 9:48 am
I’ll be okay
) I just hope that more vendors start to come around to understand the needs of the Celiac community.
Megan
April 4th, 2011 at 8:49 pm
Thank you. My husband is celiac and we hate the GF fad crap.
Shauna
April 21st, 2011 at 2:28 pm
Thank you for articulating what I am experiencing. Being a “new” celiac is really hard with GF being so faddish. Hopefully things will change for the better for us soon.
Marilyn
April 27th, 2011 at 11:49 am
Hi Caitlin
Firstly let me say how I agree and sympathise with your GF Fad experience. I have been celiac for over 22 years now and although GF products are more available now than they ever were in stores, the ‘FAD’ and lack of understanding of true Gluten Free diets make it difficult to be sure that some items are indeed safe. I guess we stick to the know GF brands or start baking our own – even then ingredients can be a problem!
One positive from the celeb world is a little more publicity on the Celiac condition may help people to understand – we can only hope!
Secondly, I think your website is great – how I wish it had been around when I was first diagnosed!! Keep up the good work.
Joanne
May 22nd, 2011 at 10:21 pm
What do you think of Dannon yogurt now labeling their products gluten-safe or not gluten safe? Not worth my time, ugh!
I’m in the middle of planning for a family reunion where 5 families will be staying in the same house, sharing meals, etc. Everyone thinks I am over-the-top in cooking for my daughter with celiac already…but they just have no idea. Her gastro said she is the 2nd most sensitive patient she has, but that doesn’t even describe the damage that has already been done, how severely anemic she is, along with the other deficiencies because of this disease. I’ sick of people saying, “it is no big deal.”
Sorry, I had ranted on your post. Sometimes it is just nice to know there is someone else out there who completely understands.
caitlin
May 23rd, 2011 at 9:41 am
Don’t apologize for the rant. And thank you for going the extra mile for your daughter. When I was diagnosed my mom overhauled their kitchen and started cooking all GF meals for me (I didn’t even live at home at the time!). As a kid with Celiac, thanks.
I had no idea about Dannon. Thank you for sharing that with all of us. Another tricky label to look for is “no gluten ingredients” basically it means that no care is taken to prevent cross contamination.
As some people have pointed out, let’s hope that this fad will lead to some exposure so that there will be understanding among others. Hopefully one day, you won’t hear the words “it is no big deal” anymore.
Steph
September 22nd, 2011 at 1:06 pm
I just stumbled across your blog – and THANK YOU for posting this!! I have recently developed a fairly severe gluten allergy, and have really been struggling with eating out. I am so tired of being offered a gluten free bun, with a burger that contains gluten, or similar situations. And I hate feeling like I’m just an overly demanding customer on a fad diet. So again, thank you.
I am also in Calgary and looking forward to reading through the rest of your blog for suggestions.